Organisation · Verband
AGORA Foundation
agora-foundation-eutr-09442169
· NL
Aussagen (8)
eu transparency category
Academic institutions
dokumentiert
[Q-16963]
eu transparency goals
Our mission is to facilitate sustainable access to effective gene therapies for treatment of patients with ultra-rare diseases in Europe focusing on Inborn Errors of Immunity (IEI) and Inborn Errors of Metabolism (IEM).
In recent years it has become evident that effective stem cell gene therapies are not reaching patients in need for non-medical reasons. To achieve sustainable and affordable access to these life-changing gene therapies for patients with rare inherited diseases (r)evolution is needed to provide alternatives for the conventional commercialization model when not fit for purpose.
In recent years it has become evident that effective stem cell gene therapies are not reaching patients in need for non-medical reasons. To achieve sustainable and affordable access to these life-changing gene therapies for patients with rare inherited diseases (r)evolution is needed to provide alternatives for the conventional commercialization model when not fit for purpose.
dokumentiert
[Q-16963]
eu transparency id
927015094421-69
dokumentiert
[Q-16963]
headquarters city
Leiden
dokumentiert
[Q-16963]
headquarters country
NL
dokumentiert
[Q-16963]
interest class
academic_research
dokumentiert
[Q-29773]
legal form
Not for Profit
dokumentiert
[Q-16963]
legal form class
stiftung
berichtet
[Q-29775]